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1. What is a Registry 5 лет назад


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1. What is a Registry

What Is a Registry (5:52) What is a patient registry? A registry as a community This video is #1 in a series of videos taken from an August 2017 webinar about the FTD Disorders Registry produced by the Association for Frontotemporal Degeneration. Videos in this series include: What is a Registry? What Is the Purpose of the FTD Registry? (5:37) Why Join? Who Can Join the FTD Registry? (3:59) FTDDR Contact Registry (2:23) FTDDR Research Registry (6:58) Participant Login, Dashboard & Username/Password Recovery (5:10) How Your Data & Privacy Is Protected (1:30) Q&A Topics (20:50) For more information about the FTD Disorders Registry, please visit our website at https://www.ftdregistry.org. For more information about the Association for Frontotemporal Degeneration, please visit their website at https://www.theaftd.org/

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