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Patient Engagement in Research

The Patient Research Exchange (PRE) was founded by a group of patient advocates from Patient Organizations (POs) across a broad range of conditions and geographic regions to foster mutual learning and collaboration. The Steering Committee for the Patient Research Exchange came together after having exchanged ideas, experiences, and expectations concerning active patient involvement in clinical trials and generation of patient based evidence at a global patient forum in 2014. An Editorial Board comprised of members of the steering committee manages the Patient Research Exchange website. Their mission is to provide a platform that facilitates communication among patients, patient advocates, patient organizations, and all other relevant stakeholders about patient engagement in research that will result in: * Better understanding of and opportunities for patient engagement in research * Closer collaboration between patient advocacy leaders across disease states and from around the world * Appropriate alignment and optimal positioning of patients in research * Increased effectiveness of patient engagement through shared learning based on practical experiences * Identification for all stakeholders of opportunities for patient collaboration in research